Eur J Paediatr Neurol. Sep;16(5) doi: / Epub Jan Beyond the Burke-Fahn-Marsden Dystonia Rating Scale. Burke RE, Fahn S, Marsden CD, Bressman SB, Moskowitz C, Friedman J. Validity and reliability of a rating scale for the primary torsion dystonias. Download Table | Burke-Fahn-Marsden Dystonia Rating Scale from publication: Early Globus Pallidus Internus Stimulation in Pediatric Patients With.
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FMDRS – Fahn-Marsden Dystonia Rating Scale
Good long-term efficacy of pallidal stimulation in cervical dystonia: Stebbins Consulting and Advisory Board Membership with honoraria: Short, self-report voice symptom scales: This review is part of a process to assess scales currently in use for evaluating clinical aspects of movement disorders.
Arch Otolaryngol Head Neck Surg. Electrical stimulation of the globus pallidus internus in patients with primary burk dystonia: Chronic stimulation of the globus pallidus internus for control of primary generalized dystonia. A standardized form was drawn up to allow structured assessment of the scales with regard to their descriptive properties, availability, content, use, acceptability, clinimetric properties, and overall impression inpatients with dystonia see online supporting material.
It is more sensitive in detecting statistical and clinical changes than other subscales, although it has not been widely used as an outcome measure.
Fahn-Marsden Dystonia Rating Scale (FMDRS)
Am J Speech Lang Pathol. Stebbins12 Christopher G. We did not consider scales and questionnaires specifically designed for secondary dystonias or requiring measurement devices. Goetz Consulting and Advisory Board Membership with honoraria: The VPQ is a simple and efficient scale, but as a disability scale, it has no discriminant value and is not specific for dystonia.
The FMDRS does not assesses in detailed the individual body areas, such as separate ratings for proximal and distal limbs; moreover, included in the FMDRS there is a subjective patient rating for speech and swallowing.
The CDIP is a disease-specific patient-rated questionnaire that measures quality of life in patients with cervical dystonia To facilitate research and clinical practices aimed at improving the assessment and treatment of dystonia syndromes, the Movement Disorders Society convened a task force to evaluate the dystonia rating instruments that have been used in published studies.
This met analysis prevalence figures is likely to be an underestimate, as it is based on studies with recruitment of diagnosed cases only and it is clear that eystonia and under-diagnosis is a significant problem 2. Individual subscales and the total TWSTRS score have been used as outcome measures in many treatment trials, evaluating BoNT therapy, pharmacotherapy and surgery 22 — The task force recommends five specific dystonia scales and suggests to raying validate in dystonia two recommended generic voice-disorder scales.
Use by multiple groups outside the original developers The VPQ has been used to measure outcomes in interventions in several trials none of which burkee performed on patients with dystonia 78 — Pre-treatment evaluation aims at characterizing the severity and topography of motor symptoms and their impact on activities of daily living and provides a baseline reference for post-treatment evaluations. The VHI is similar raging the Vocal Performance Questionnaire, and direct comparisons have been made showing similar clinimetric properties.
Capturing the true burden of dystonia on patients: CDIP can measure the impact of botulinum toxin treatment in cervical dystonia. Outcomes assessment following treatment of spasmodic dysphonia with botulinum toxin. Stebbins Research project conception and execution, organization, manuscript review. The VPQ is a questionnaire designed to allow patients to consider aspects of their own vocal performance and rate their severity. Quality-of-life assessment in patients with unilateral vocal cord paralysis.
Botulinum toxin type B de novo therapy of cervical dystonia: Acta Neurochir Wien ; Sixty Hertz pallidal deep brain stimulation for primary torsion dystonia. Efficacy and safety of botulinum type A toxin Dysport in cervical byrke However, considering that the VHI was validated on few patients with laryngeal dystonia compared to the total number of patients assessed, it still needs further validation for dystonia.
Dystonia rating scales: critique and recommendations
It was developed for use in clinical research, audit, and treatment trials. Mink Research project conception and execution, organization, manuscript review. All items have a 5-point score.
Although only the original German version was validated, an exact translation into English, including back-translation, was performed Strengths and weaknesses The VHI is a simple and efficient scale, but as a disability scale, it has no discriminant value and is not specific for dystonia. The following criteria were specifically distilled from the available evidence.
Support Center Support Center. A training tape for clinicians is available for the severity scale The VHI is a patient-rated scale addressing disability related to verbal communication. Long-term clinical outcome in meige syndrome treated with internal pallidum deep brain stimulation. Leentjens The acale has received research grants from the Michael J Fox Foundation and the Stichting Internationaal Parkinson Fonds, and received compensation for a presentation from Benecke Consultants.
It is composed of 24 items, forming five subscales: Health Qual Life Outcomes. Pallidal deep-brain stimulation in primary generalized or segmental dystonia.
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